Thursday, December 31, 2009
Happy New Year!
Wednesday, December 30, 2009
Monday, December 28, 2009
PET Scan Results
This news is very hard to take and makes the coming year seem daunting. Please pray fervently for strength for Mom as she takes on more chemo beginning this Thursday morning (the 31st). Please also pray for wisdom for her, for my dad, and for the doctors as they take one step--and one day--at a time.
On a positive note: Mom and Dad booked a cruise to Rome in June and John and I continue to happily plan our May wedding and have begun our house hunt. Grant and Deborah are still at Mom and Dad's with the kids, who make everyone smile. We are choosing to keep hope alive and thank you for hoping along with us.
Friday, December 25, 2009
Christmas Day
Wednesday, December 23, 2009
From Deb
We do not have the results of the PET scan. None of the doctors phoned. I'm going to assume they are short handed with the Christmas week here and that we won't hear results until next week. The unknown is frightening, but that's where trust comes in.
Tonight Nadine and John arrive, and tomorrow Grant and Deborah, along with Miles and Claire come. We are so very excited to have our family here. We plan to be thankful for our time together as we celebrate the birth of Christ.
God bless you all,
Deb
Monday, December 21, 2009
From Deb and Will
Even as we await results from today's PET scan with some fear, we know that the Lord is the author of our lives and the He has already ordained our days on earth before we lived one. How thankful we are for Jesus, His birth, and His death and resurrection. Wiothout that we would know no mercy or grace.
How can we begin to thank all of you for your incredible gifts of love you have given to us? Our son Grant was here for the weekend and expressed amazement at the many lives his mom has touched and how friends are reciprocating with love in these tenuous days.
We are thankful for the food. Although Will can cook, it is such a blessing to have the time to sit and hold hands and not have to worry about preparing food. We feel overwhelmed with friends who come up with such creative ways to show love: planting bulbs, showing up to bake cookies so I have them for when all the "kids" arrive on Christmas Eve, gift cards to Whole Foods, Trader Joes, Barned and Noble, warm clothes to keep the cold away, matching Christmas mornng socks for Deb, Nadine and Deborah, inspirational paintings and music, and so much more.
We appreciate your prayers and word of support. We don't know what 2010 holds. Although the doctors are not optimistic, they are not God. I am thankful He is my fortress and strength. I will look to Him.
We know so many of you have gone through or are going through difficult times. We consider it a blessing for you to share those with us so we can pray for you also.
Our prayer in this most wondrous time of year is that you will fill your lives with the hope that Christ can bring, and you will grasp onto His assuring presence, just a we do.
Thank you all for your presence in our lives. We send much love and wish you all a very blessed Christmas with family and friends.
Deb and Will
Sunday, December 20, 2009
Thursday, December 17, 2009
More insight into Mom's condition:
Thank you both again for inviting me to be a part of your appointment today. It wasn't easy, but it was really important to me that I could be there. I wanted to give you a run down of what I heard in the appointment today. I can't promise that I remember it all perfectly; you may have gotten a different perspective than I did, but there was a lot that was thrown at us and we were all very emotional, so I thought it might help to have it written down...
Overall, I think it is important to keep remembering that we have to be positive and optimistic; the chemo is working. We saw pictures of the liver masses before and after treatment, and they are both shrinking and getting much less dense. Dr. Sun mentioned that only 50% of cases respond to chemo, so this is a very good thing. Also, what we were feeling was negligence and a lack of communication on their behalf he wants us to realize is that they are all trying to make the best decision and that your case is very hard. They are only able to operate on 20-30% of tumors, but they try to give every case the best shot that they can have. If you just had a primary tumor with a few liver masses, they would do surgery with no concern. If you only had one lung mass, they would also do surgery, especially since ALL the masses are responding to the chemo and getting smaller. Since you have quite a few masses in your liver AND have a few masses in your lungs, they are very concerned that doing major surgery on your liver and giving you the chance to recover afterwards (with no other chemo treatments) would allow the remaining tumors in the liver and the lungs to grow even more, and that surgery like that would be a bad option, because if the surgery doesn't buy you some amount of quality time, then it's not worth doing. They are all on the fence right now as to the plan of action, so they have scheduled a PET scan to get a better sense of what your lungs look like (how many masses there are and in how many places) and how well they are responding to the chemo.
They also seem to want to do a few more rounds of chemo, because since it is working so well and they are on the fence about doing surgery, a few more rounds of this therapy will likely make all the tumors shrink more and give you a better chance at a successful surgery. Dr. Dreiben will touch base with you after the PET scan to share the result, but again, this may not tell us whether or not surgery is the plan, since they may need the few more rounds of chemo to actually decide. It may however tell us if surgery is out of the question, if there are too many masses in the lungs for them to feel like surgery is a viable option.Dr. Sun also talked a lot about the reality of your cancer. As we know, a cure is not an option. Although he said that eventually the cancer will win the war, as long as there are battles to fight, you can win them, and you have to fight.
He seems to think that regardless of whether or not you are able to have surgery, you will continue with chemo treatments. Although you feel terrible with the chemo treatments, he feels that you are doing much better than most people do and tolerating them well. If surgery is not an option, there can be discussions about changing the drugs so that you have more of a quality of life than you currently do, although he warns us that what we consider a quality of life may have to shift. Although he can't tell you how long you will be able to feel ok if you stop the chemo drugs or how much time you will buy while you are on them, he reminded us that even off of the drugs, how good you feel is not going to be how you used to feel, so it's unfair to use that as a baseline (I think that was what he was trying to say). He also advised against stopping chemo treatments, but seemed ok with taking one round off for the holidays. Since they are working, why stop? Also, your tumors will get resistant to the treatments at some point, so getting the most out of the time that you have with these drugs is best.
Wednesday, December 16, 2009
Monday, December 14, 2009
Saturday, December 12, 2009
Thursday, December 10, 2009
We did get word today from the liver doctor (I'm sure he has a formal title, but I'm not sure what it is) that he would like Mom to get 4 more rounds of chemo starting in January since her liver continues to respond. Right now Mom is just focusing on rebuilding her strength and isn't prepared to make decisions about chemo right now. The oncologist is supposed to weigh in tomorrow. We think that Mom's treatment team will order a PET scan early in January to ensure that they are targeting all areas of the body that house cancer.
I fly out tomorrow evening to spend the weekend wrapping and baking and talking and sitting and just being near Mom.
Monday, December 7, 2009
The results are in...
There is still time for miracles to happen, so please pray earnestly that the lungs will somehow come on-board and the tumors will begin to respond. Another concern is that Mom is in a lot of pain and continuing to battle nausea and other effects of the cumulative chemo treatments.
In the meantime, we will not become hopeless but instead focus on the beauty and joy of the season, anticipating all the quality time we will spend together over the next several weeks.
I know that we have all appreciated the comments you have made both publicly on the blog and privately via e-mail or phone conversation. Please continue to send encouragement. I always welcome "guest contributors," so if you have a scripture verse to share, a funny story to tell, or a simple reflection please don't hesitate to type away. Thank you all for the outpouring of love you continue to offer.
Saturday, December 5, 2009
Prayer for mom is more critical now than ever as we await the results of Friday's scans. We should know something more on Tuesday. For now, Mom and Dad are enjoying the company of friends and managing to unpack some Christmas decorations.
Thursday, December 3, 2009
But now, this is what the LORD says--
he who created you, O Jacob,
he who formed you, O Israel:
"Fear not, for I have redeemed you;
I have summoned you by name; you are mine.
When you pass through the waters,
I will be with you;
and when you pass through the rivers,
they will not sweep over you.
When you walk through the fire,
you will not be burned:
the flames will not set you ablaze.
For I am the LORD, your God,
the Hold One of Israel, your Savior."
Wednesday, December 2, 2009
On a positive note, my parents' long-time friend, Jane Hultman, arrived from Pittsburgh today and will be joined by her husband, Dick, on Friday. I hope this visit is meaningful and encouraging for them all.
Tuesday, December 1, 2009
1. Pray that the surgery will be scheduled as soon as possible and that Mom will be a candidate for both the colon and liver surgery at the same time.
2. Pray that Mom will be able to endure another grueling round of chemo and still have strength left to enjoy the upcoming Christmas festivities.
3. Pray that Mom's side effects from the chemo will be minimal and that the tumors will continue to steadily shrink.
Monday, November 30, 2009
On the eve of Mom and Dad's 36th wedding anniversary, I paused to read and reflect on the above quote. I also pause now to celebrate the marriage of my parents, of two people who have been through their share of the "better" and the "worse, " of a couple who has experienced the interworkings of marriage and the ups and downs of life and continually come out on the other side. I am sure there were many times when they could have thrown in the towel, said 'enough is enough', pursued dreams of their own so personal that neither Grant nor I could even begin to guess at what they were. I can only hope and pray that I will have the opportunity, someday, to celebrate as many anniversaries as my mom and dad will celebrate tomorrow.
Maybe some would say that there isn't much to celebrate right now. Maybe Mom and Dad feel tired or feel as though they are gazing into a future so uncertain that they might as well stop planning and just passively accept what comes. But I don't believe that love is passive. I believe that love "always hopes, always perseveres." So press on, Mom and Dad. Keep moving forward with determination and hope and gladness. Keep modeling the forgiveness for one another and the committment to one another that I have grown to admire. I know that I join many, many others when I pray that 36 years will turn into 46 and 56 and 66 and all the while, through trial after trial, your roots will become more deeply intertwined.
Thank you for being models of love for me and for Grant and for others in your life. I love you both with all my heart.
Saturday, November 28, 2009
Yesterday Mom and Dad accompanied me to a bridal boutique where I bought my wedding dress, and then in the evening John joined us for a belated birthday dinner for Dad. We kept everything low-key because Mom was very tired and still dehydrated. Plus, she needed to reserve her energy for this morning, when a friend of Deborah and Grant's spent over an hour photographing all of us together, both posed shots and candids of the kids playing and all of us sitting around talking.
As you think about Mom this week and continue to uphold her in prayer, please pray specifically that she will be strong as she approaches yet another round of chemo. I could tell just by being near her as well as by what she expressed that it will be hard to face another round right on the heels of the last one. She will also meet with the surgeon early this coming week to set a date for surgery.
Thursday, November 26, 2009
Happy Thanksgiving!
Tomorrow holds the promise of more opportunities to make lasting memories. Please continue to pray that Mom will gain some weight, keep down food and liquids, and be encourgaged and strengthened.
Monday, November 23, 2009
Speaking of the power of prayer, Mom and I were talking today about the fact that she is feeling pretty well despite the recent dose of chemo, and she is definitely attributing that to everyone's prayers. My cousins visited with her yesterday and she had an accupuncture appointment today, but other than that she has been resting and preparing for the drive to Pittsburgh tomorrow. Please pray for traveling mercies as well as for Mom's pain and fatigue to be at a minimum as they travel. We anticipate many opportunities to make wonderful memories over the next several days.
Saturday, November 21, 2009
From Deb
For me, the chemo was removed today after its 3 day infusion into my body. With the encouraging news that the tumors are shrinking it is a bit easier to put up with the horrible side effects as the poison wrecks havoc with my body. Typically Sunday and Monday are the days I really crash so I solicit your prayers specifically for the next two days.
God is certainly faithful in answering prayers. What a joy to be able to trust in Him.
Thursday, November 19, 2009
Wednesday, November 18, 2009
I was driving to work this morning, listening to K-Love (Christian radio) when I heard a song called "Let the Waters Rise" by this new band called Mike's Chair. The words ministered to me and I wanted to share them with all of you.
Don't know where to begin
It's like my world's caving in
And I tried but I can't control my fear
Where do I go from here
Sometimes it's so hard to pray
You feel so far away
I am willing to go where you want me to
God I trust you
There's a raging sea
Right in front of me
Wants to pull me in
Bring me to my knees
So let the waters rise
if you want them to
I will follow You
I will follow You
I will follow You
I will swim in the deep
'Cause you'll be next to me
You're in the eye of the storm and the calm of the sea
You're never out of reach
God you know where I've been
You were there with me then
You were faithful before
You'll be faithful again
I'm holding your hand
God your love is enough
You will pull me through
I'm holding onto you
God your love is enough
I will follow you
I will follow you
Tuesday, November 17, 2009
Deb's turn
I was talking to Nadine and sharing my days with her and she said she thought it would be helpful to share with you. So here goes. Yesterday (Monday) was a particularly low day for me. I went to work at the office but got so exhausted I had to leave. I simply couldn't shake the feeling of doom. I cried most of the day and went to those dark places where it is not helpful to go. Will was at Session meeting and I was so low. It was a very difficult evening for me.
However as a good friend reminded me today--that's why God orchestrated 24 hours in a day, because there is a beginning and an end. The end and going to bed puts closure on a tough day and brings hope of the morning.
Today has been so much better. I had energy to work from home on my project. Then I had several visitors. I always find I am much better when people visit. I'm sure it is my personality of loving to have people all around me. They told stories, made me laugh, shared crises in their own lives. They treated me as their friend. I thrived.
Read a very meaningful devotion from Streams in the Desert. I would like to share a portion that I found so helpful. "Therefore do not always look ahead to your tomorrows for some ideal situation, exotic difficulty or faraway emergency in which to shine. Rise today to face the circumstances in which the providence of God has placed you. You crown of glory is hidden in the heart of these things--the hardships and trials pressing in on you this very hour, week, and month of your life. Yet the most difficult things are not those seen and known by the world but those deep within your soul. It matters not how the battle goes, the day how long; Faint not! Fight on! Tomorrow comes the song."
That is my prayer for all of you as you battle life's uncertainties and hardships. Please pray for me to learn to take one day at a time.
Thursday morning is my appointment with the oncologist. He will tell us the results of the MRI. Then we will know if the chemo regiment is working and some cancer cells are dying. If so, I will undergo another chemo session that day. If not, it will be decision time. Pray for wisdom in decision making and peace as we await results.
My heart overflows with gratitude for your love and support,
Deb
Monday, November 16, 2009
I hate being far away from Mom, and I wish more than anything that I was boarding a plane again this week to be with her during chemo on Thursday, but I'm looking forward to lots of good family time on Thanksgiving. It seems like kind of an ironic holiday now that we are walking through a time of crisis and uncertainty, but what I'm learning is that having spirit of gratitude does not mean being happy and contented about everything, but instead focusing on what we DO have--another day to love each other and to enjoy the sun rising in the sky, the blessing of friends and co-workers and even strangers who are praying along with us.
This weekend I had the opportunity to have lunch with one of my dearest friends in the world, and it was so nice to be with someone who knows me and accepts me as I am, someone I didn't have to pretend with, and someone who has been with me through the rough patches and the joyful moments of my life and been a consistent, trusted confidant the entire time. She is gift to me. My prayer today is that we would all take a moment to thank special people in our lives. I don't think we can ever know how important those acknowledgements might be.
Friday, November 13, 2009
From Dorothy again
Wednesday, November 11, 2009
From Dorothy
Monday, November 9, 2009
From Deb
Sunday, November 8, 2009
Friday, November 6, 2009
Nadine is back!
Thursday, November 5, 2009
From Will
Wednesday, November 4, 2009
I am so very happy that Nadine is coming from Friday until Monday to be here as a support. She brigs me comfort and love, and I long to have her sit with me, pray with me and talk about the wonderful memories we have and hope for ones we will create for the future.
My cousin reminded me today that Galations 6:2 says, "Carry each other's burdens, and in this way you will fulfill the law of Christ." So many of you have taken that verse to heart and have given such an outpouring of love to us.
I covet your prayers for the next several days I am on the chemo infusions.
Thank you, Deb
Monday, November 2, 2009
A man I admire in my cancer support group (he just got married to a wonderful woman a month ago) said it takes about eight months until you start to see the blessings that dealing with cancer bring to your life. The first time he said that I could not imagine, but you know, he is right. Each day brings a struggle of nausea, fatigue, times of being afraid and times of feeling surrounded by peace.
My blessings have come in the form of family and friends. So many prayers and so much support. How grateful I am for that. It seems that people just know wonderful ways to show their love. Friends who buy me acrylic glasses because they won't conduct the cold and hurt my fingers; send money and say "this is to be used for valet parking at the hospital"; buy me a sweatsuit because I am so cold; bring over snacks for Will to enjoy during the Phillies games; Whole Foods gift cards so buying organically isn't such a financial burden; money designated for my hair dresser to come to my house; coming to visit from many parts of the country to just hold my hand when I am having a down time; sending books and food and beautiful cards, all reminding me of God's love for me and my family. I have especially felt privileged to have people pray with me and for me.
I have missed having siblings, yet two of my cousins have started emailing me almost daily just to keep in touch, sharing memories and just telling me about their lives. It has filled a void of not having family around. How thankful I am for them. I look forward to getting emails from many friends just telling me about life or sending a joke to make me laugh.
I am blessed. I don't know what the future holds. But none of us know that. I do know that I have surrendered my will to the Lord and I will face the many challenges with His help. I don't know what I would do without Will's support and Nadine, Grant and Deborah's love and support.
I want to thank all of you. I do send my love to you all.
Friday, October 30, 2009
Thursday, October 29, 2009
(It’s Jeanie again –)
Deb was eager to buy some of the edible items suggested by so many of you, so we drove across town to the Trader Joe’s in Jenkintown. (I kept looking for sterile concrete freeways, but had to settle for the amazing gold and yellow and red forests, meandering streams, and rolling hills . . . ) We filled our basket, then were joined by Deb’s friend Bonnie for a healthy and delicious lunch at Whole Foods before heading home mid-afternoon.
Will and Deb really like being together, so when someone else is here he’s able to carry on much of his pastoral work. He’s been able to do some pre-marital counseling, visit several parishioners, and even rehearse with the choir for Sunday’s Saint Saens’ Cantata. (Even though he’s a novice, they’re making him sing it in Latin just like everyone else.)
Midday seems to be a low point for Deb, but an afternoon nap and good dinner perks her right up. Her side effects are consistent with the information for the drugs she’s been given, but she’s learning ways to manage them. It’s great to see her old self emerge as she takes a phone call re: her latest project – a line item in the state budget which provides funds to develop a course for superintendents and principals as they take their continuing education credits. The process provides for enough flexibility that she can work from home sometimes, and go into the office at other times.
We’re planning on experiencing our first T’ai Chi class tomorrow morning at the Wellness Center (see yesterday’s post), and, if all goes well, we shall be rewarded by a visit to two of our friends, Lord and Taylor. . .
Wednesday, October 28, 2009
Good evening from a new voice –
Nadine has graciously allowed me to be a guest contributor for a couple of days. I’ve known Deb and Will since our Southern California days (mid-1970s). I came in Tuesday morning, happily exchanging 80 degree days for the glorious colors of fall in Philadelphia.
People have been amazingly generous. Her basket of cards is an ongoing source of hope and encouragement. Tomorrow we go to Whole Foods and stock up, courtesy of many of you. And the dinners! Will and I “prepare” dinner by going “shopping” in the refrigerator, and Deb is eating well.
Today we went to her support group in the Wellness Community, which meets in a beautiful old mansion (1762) (http://www.fairmountpark.org/RidgelandMansion.asp). What a gift this group is! She went in to the meeting this morning a bit down, but two hours later emerged laughing. Rest assured that her natural gifts are still operative: She is still caring deeply for others. She found herself saying to another member, “Wow – that sounds like it’s really hard for you . . .” She learned a new term that we’re trying to internalize: “The new normal”. It’s meant to describe the current reality – not necessarily a permanent condition, but whatever the current situation is. For example, Deb’s old normal was breezing through a full workday, going to the gym, and maybe going shopping. The “new normal” is walking around the block very slowly, sometimes stopping to rest.
We then went to a shop called Material Culture -- 90,000 square feet of unique items from around the world -- which made for quite a long day.
The Phillies game is on tonight, so Will’s excited. He’s wearing his Phillies T-shirt and taking each Phillies out personally. And once again, dinner was lovingly delivered. I’m kinda likin’ it here. . . Jeanie
Sunday, October 25, 2009
Mom is so appreciative of the books and CDs that people are sending. Most are arriving anonymously so she can't thank you each individually but wanted me to tell you that they are all very meaningful. Mom's friend Jeanie arrives from CA Tuesday morning to spend the week with Mom. That will give Dad an opportunity to spend more time with his congregation. The congregation is very supportive and Mom and Dad are so thankful for their loving kindness.
One of the difficult side effects is that the tips of Mom's fingers are tingling and numb and very sensitive to the cold. She is having a difficult time typing, and picking up a cold drink or even silverware sends an electric shock through her body. The doctors have warned her that as the weather gets colder she needs to keep her nose and mouth covered because breathing in cold air will cause that same shock.
The Penn infusion nurses that come to the house have been compassionate and caring. One even prayed with Mom that she would grow closer to the Lord amidst all these challenges.
I will make every attempt tomorrow to add more photos to the blog so that you can see the faces of Grant, Deborah, Miles, Claire and me. It's been a long time--years even--since some of the readers of this blog have been physically with our family, which is why the spiritual and emotional connection we share is so important. We continue to covet your prayers around every bend in the road.
Thursday, October 22, 2009
Wednesday, October 21, 2009
Tuesday, October 20, 2009
Sunday, October 18, 2009
Thursday, October 15, 2009
Wednesday, October 14, 2009
Tuesday, October 13, 2009
Monday, October 12, 2009
If you are still wishing to do something tangible to help besides contacting Martha Lamb about making meals, you can continue to send Whole Foods or Trader Joe's gift cards. She said she would appreciate soup to eat. Mom is not allowed to have fresh flowers in the house right now-something to do with low white blood cells-so although they are beautiful we will have to wait on bringing her those.
Thank you all for your love and faith and hope.
Sunday, October 11, 2009
Saturday, October 10, 2009
Friday, October 9, 2009
So far she feels extremely fatigued but isn't experiencing nausea and was able to accompany my dad, Deborah, Miles, and Claire to the Please Touch Children's Museam today for a little while. Grant will fly in tonight after work to join them.
Wednesday, October 7, 2009
Last week in church my pastor was talking about different names for God and mentioned "Yaweh-Shalom," which means "The Lord is peace." Let's pray that Yaweh-Shalom will be very close to Mom tomorrow as she embarks on this daunting journey.
Tuesday, October 6, 2009
Dear Friends at Leverington,
Many of you have asked how we as a church community can assist Deb and Will at this time. After speaking to them both, I would like to set up a meal plan schedule that can start as early as this week for a period of at least one month. Deb is going to undergo intense treatments in the next few weeks. Deb's doctor has requested that during the treatments she stay on a bland, easily digestible diet such as chicken, seafood, rice, pasta, bread and potatoes, with very little vegetables. However, I'm sure Will would enjoy a few vegetables. If anyone is interested in bringing a meal to the McKinneys, please send an e-mail to me at mlamb4@verizon.net or call me at 215-482-0871 and I will begin a schedule.
If anyone would like to contribute financially, the Deacons are accepting donations. Will and Deb have already incurred some expenses and Deb is not currently working.
Thanks to everyone for their love and support for the McKinneys. It is a wonderful way for us to give back to them in a small way for all they've done for the Church for so many years.
Martha Lamb
Monday, October 5, 2009
Saturday, October 3, 2009
Thursday, October 1, 2009
Wednesday, September 30, 2009
Tomorrow Mom will fly out to Pittsburgh to visit Grant, Deborah, Miles, baby Claire, and me. We are so looking forward to spending this time together.
I was struck this morning, in the midst of my exhaustion and sadness and discouragement, with the realization that God loves my mom more than all of us combined could hope to love her. Though all of this is beyond my understanding, I know that he holds her in the palm of his hand.
Please continue to leave messages of encouragement on this blog. They bring strength to our hearts.
Monday, September 28, 2009
Some of you have asked for suggestions as to how you might contribute in a helpful way. Mom and Dad will be shopping at Whole Foods for supplies for Mom's eating plan, so if you would like to send a gift card please feel free to do so. If you need their home address just e-mail me.
James 5:16 says, "...pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective."
Friday, September 25, 2009
Naturally, many people are asking how they can tangibly show love and concern. Currently, my mom has adopted a severe regiment of eating only organic fruits, vegetables, gluten-free products and natural food, so please do not bring or send food. We covet your prayers and your positive thoughts.
As new information becomes available, I will update the blog. Grant or his wife, Deborah, might contribute as well. We believe in hope and in God's healing power. My mom is one of the strongest people I know, and she is a fighter.
If you would like to post words of love, support, or encouragement you may do that here. Also, if you have questions or suggestions for me, please e-mail npmemories@yahoo.com